Patient Centricity, Engagement and Recruitment through Amazon for Clinical Trials

Dropout is a huge obstacle for a clinical research trial. Factors such as financial, social, altruistic or philanthropic could have a greater influence on a patient’s decision to participate in clinical trials.

A large number of patients are relying on socially available platforms such as technology, social media, and even self-education to entrust medicines which are seen as the crucial part of the industry.

Digital Patient Spot

Digital patient spot in patient centricity has the potential to increase the quality of discussions between physicians and patients to a significant level. Benefits incorporating the engagement of digital patients have been realized to a larger extent.

Boosting Patient Centricity

Competitions or contests will be run on a regular basis by pharmaceuticals to get the inflow of ideas and feedbacks on informed consent forms (ICFs), protocols and trial designs. Based on the responses received out of open discussions on draft protocols that are specifically focused on endpoints, visited structures are encouraged and updates are made accordingly.

Patient bond is the ultimate key to seeking patient inputs in informed consent forms. Those references could be used to build effective ICFs. Even though some kind of designed approach is used to build ICFs, a science-based approach will facilitate uncover patient insights since the former is behavioral.

Therefore as we have seen the aim of healthcare and its wide established access for the betterment of patient centricity the clinical research centers should have adapted to the growing needs and advancement. In the future, improved healthcare system and profits can be expected if the pharmaceutical industries and patients work symbiotically.

Patient Network

Probably the biggest benefit Amazon could offer to pharma is the ability to quickly identify many qualified patients for clinical trials. A related press release from Evidation Health, a Silicon Valley digital health startup, caught my attention — it reported that Evidation and its collaborator the American Sleep Apnea Association (ASAA) had enrolled a staggering 1,000 participants in the first 24 hours for the Sleep Health Web Study.  (Source:Evidation Health and ASSA Study)

Amazon is excellent at profiling its Prime members’ preferences. Assuming Prime members also participate in Amazon’s patient network (i.e., EHR) program, patient recruitment can be completed in days or weeks, instead of months or years. Recruitment would no longer be the bane of clinical trial timelines. (Source:Amazon’s Surprise)

Quite often the techniques followed may lead to a large number of costly and complex trials without addressing the patient’s convenience or needs. By 2018, it is estimated that the medical spending on medicines would increase by 30% ($1.3 trillion). Enhancing and adding new required features will make the technology more patient-friendly. This technology has huge potential if used effectively and would be an upcoming trend which will increase in the coming years.

Smit Shah

 

 

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Struggle for actual data vs Melodrama Data

We all know what is the value of data, we all fights for our whole life for actual data based on that we make our most important decision. But what if someone tell any vague data and spread wrong message all over the nation.

Do you really think 11,500 Children dead and 45,000 Children paralyzed forever due to clinical trials? Can you believe this numbers?

What if someone tells this numbers on big platform like Movie, what impressions people will have about clinical trials? We requires Clinical Trials for medical advancement, don’t we need?

We are not against for upcoming Movie (Umeed) we requires authenticate data if someone is proposing “Based on True Events”. We truly believe presented data (11,500 children dead and 45,000 children paralyzed forever) are not correct.  Its good if someone spread awareness on unethical drug trials but it should not be fictional just for the sake of making any melodrama movie.

I have filed Petition via Change.org to censor board, please sign this petition and spread among your networks.

https://www.change.org/p/central-board-of-film-certification-umeed-upcoming-movie-11-500-children-dead-48-000-paralyzed-forever-due-to-clinical-trial?recruiter=68451990&utm_source=share_petition&utm_medium=copylink&utm_campaign=share_petition&utm_term=share_for_starters_page

Please let me know your thoughts on how we can prevent this to mislead to our people.

Regards,

Smit